Indiana Sickle Cell Consortium
  • Blog
  • Patient Information
    • SC Information
    • Resources
    • Find a Provider
    • Hemoglobin Traits
    • Comprehensive Care
    • Peds to Adults
    • School and Career
  • Provider Information
    • Continuing Education
    • Sickle Cell Resources
    • Emergency Care
  • Community Based Organizations
  • Contact Us

ISCC Blog

Sickle Cell Advocacy Day 2019!

2/7/2019

0 Comments

 
Picture
Picture
January 14, 2019 was a cold and snowy day, but the weather couldn't stop us from holding our 2nd Annual Sickle Cell Advocacy Day at the Indiana State Capitol! Our goal this year was to get a hearing for a bill that would provide funding for services for adults with sickle cell disease. People with sickle cell, their friends and loved ones, and medical and community providers all came together to listen and share stories on what adults with sickle cell experience when they seek medical care or look for a job. Our team was able to talk to many legislators about this important issue, and to encourage them to support Rep. Porter's HB1354, which would provide funding for adults with sickle cell in Indiana. This bill is now in the House Ways and Means (budget) committee, and we are hopeful that soon we will see some real changes for people with sickle cell disease in Indiana!
Picture
0 Comments

    Archives​

    April 2020
    September 2019
    July 2019
    March 2019
    February 2019
    May 2018
    April 2018
    February 2018
    January 2018
    November 2017
    October 2017
    September 2017
    July 2017
    June 2017

    Categories

    All
    Adult Care
    Pediatrics
    Sickle Cell Disease
    Transition

Picture
​©2018 Indiana Sickle Cell Consortium
  • Blog
  • Patient Information
    • SC Information
    • Resources
    • Find a Provider
    • Hemoglobin Traits
    • Comprehensive Care
    • Peds to Adults
    • School and Career
  • Provider Information
    • Continuing Education
    • Sickle Cell Resources
    • Emergency Care
  • Community Based Organizations
  • Contact Us