Sickle Cell Advocacy Day 2019!

January 14, 2019 was a cold and snowy day, but the weather couldn't stop us from holding our 2nd Annual Sickle Cell Advocacy Day at the Indiana State Capitol! Our goal this year was to get a hearing for a bill that would provide funding for services for adults with sickle cell disease. People with sickle cell, their friends and loved ones, and medical and community providers all came together to listen and share stories on what adults with sickle cell experience when they seek medical care or look for a job. Our team was able to talk to many legislators about this important issue, and to encourage them to support Rep. Porter's HB1354, which would provide funding for adults with sickle cell in Indiana. This bill is now in the House Ways and Means (budget) committee, and we are hopeful that soon we will see some real changes for people with sickle cell disease in Indiana!