INSCDC
Indiana Sickle Cell Data Collection (INSCDC)
The Indiana Sickle Cell Data Collection (INSCDC) program seeks to better understand the sickle cell population in our state.
INSCDC wants to understand where individuals with sickle cell and their families live, their age, how they use healthcare services, and much more so that additional public health interventions and research can lead to improvements in health outcomes to address the impact of racism, prejudice, and discrimination. Advocacy and public policy efforts may increase resources available to the SCD community.
INSCDC is a collaborative effort that includes community-based, healthcare, research, and public health organizations in Indiana:
- Martin Center Sickle Cell Initiative (MCSCI)
- North Central Indiana Sickle Cell Initiative (NCISCI)
- SCACURE Networks
- Beacon Health
- Indiana Department of Health
- Innovative Hematology
- Riley Children’s Health/IU Health
- Parkview Health
- Regenstrief Institute
The team in Indiana works with the Center for Disease Control and Prevention (CDC) and nearly twenty other states to advance our understanding of the sickle cell population in the U.S.
Data Dashboard
An interactive data dashboard is available if you would like to review key INSCDC data.
If you are interested in requesting INSCDC data, please fill in the appropriate information.
More Information
For additional information about the nationwide efforts please review the resources provided by the CDC.
Upcoming Events
Our partners host or attend sickle cell related events around the state. We hope you can join us!